Why It Matters

The Family of Freeda Breuer has entered the federal lobbying arena, hiring Stonington Global LLC to advocate on health issues. The registration marks the family's first identified federal lobbying effort and comes as Congress considers legislation affecting families of children with special health care needs and broader federal health programs.

The filing does not identify specific legislation or provide additional details about the health policies the family plans to address, leaving the precise purpose of the lobbying effort unclear. The family will be represented by Dr. Nick Muzin, a former senior congressional aide and veteran lobbyist who founded Stonington Global and previously served as an adviser to Sen. Ted Cruz (R-TX) during his presidential campaign.

By The Numbers

The lobbying registration was filed August 19. Dr. Nick Muzin, a principal at Stonington Global LLC, is representing the family on health issues. No prior lobbying activity for the Family of Freeda Breuer was found in the one-year period before Aug. 19. Stonington Global LLC reported total lobbying revenue of $905,000 from all clients in the 12 months preceding the registration, with clients including TL Management LLC, which paid $605,000, and B&H Foto & Electronics Corp., which paid $300,000.

Hundreds of patients, family members and advocates participated in Rare Disease Week on Capitol Hill from Feb. 24-26, meeting with congressional offices to advocate on federal rare disease policy.

Between The Lines

H.R. 1435, the Family-to-Family Reauthorization Act of 2025, was introduced by Rep. Mikie Sherrill (D-NJ) and has eight cosponsors from both parties. The legislation would extend funding for Family-to-Family Health Information Centers, which assist families of children and youth with special health care needs. The bill remains referred to the House Energy and Commerce Committee.

S. 3714, the Family-to-Family Reauthorization Act, was introduced by Sen. Maggie Hassan (D-NH), with Sen. Tim Scott (R-SC) as a cosponsor. The Senate bill would also extend funding for Family-to-Family Health Information Centers and was referred to the Senate Finance Committee.

The Bottom Line

The Family of Freeda Breuer's registration adds a new lobbying client focused on health policy, although the disclosure does not identify a specific bill or provide additional detail about the health issues the family plans to address.

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