Overview Money In Money Out People Positions Interview Endorsements
About The mission and purpose of this organization is to advocate for the communities affected by retinitis pigmentosa, Bardet-Biedl syndrome, blindness and low-vision disorders.
Donations are tax-deductible
Financial Snapshot FY ending 2024-12-31 Financial history 23 24
Revenue Expenses
Latest FY2024: $12.5M
Foreign activity (Schedule F) Total spent abroad $3.0M
Foreign partnership interest No
Foreign trust interest No
Region Activity Spent Europe — —
Political & Grant Activity Address 4967 S Ellesmere ST
Gilbert, AZ, 85298-061
Governance Voting board members 3
Independent members 3
Conflict-of-interest policy Yes
Whistleblower policy No
Doc-retention policy No
Audit committee No
990 reviewed by board Yes
Fundraising activity (Schedule G) Uses professional fundraisers No
Channels Email
Public records
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