The mission of the ALS association is to make ALS livable and CURE it.
Donations are tax-deductible
Category
Other
Employees
528
Volunteers
25
Financial Snapshot
FY ending 2025-01-31
Revenue
$68.6M
Expenses
$82.2M
Assets
$107.2M
Liabilities
$18.3M
Financial history
$84.2M$42.1M$0
171819202122232425
RevenueExpenses
Latest FY2025: $68.6M · Avg: $40.6M
Foreign activity (Schedule F)
Total spent abroad$2.9M
Foreign employees0
Foreign offices0
Foreign partnership interestNo
Foreign trust interestNo
Region
Activity
Spent
EAST ASIA & THE PACIFIC
—
—
EUROPE
—
—
501(h) election
This 501(c)(3) elected the 501(h) safe-harbor — lobbying expenditures are capped under a clear dollar formula instead of the "insubstantial part" standard.
Political & Grant Activity
Campaign Spending
—
Lobbying
$1.1M
Grants Given
$12.7M
AMYOTROPHIC LATERAL SCLEROSIS ASSN
Your actions
Address
1919 University AVE W STE 175
Saint PAUL, MN, 55104-359
Governance
Voting board members25
Independent members25
Conflict-of-interest policyYes
Whistleblower policyYes
Doc-retention policyYes
Audit committeeYes
990 reviewed by boardYes
Compensation practices
Severance paymentsYes
Equity-based compNo
Supplemental retirement planNo
Compensation committeeYes
Used comp surveyYes
Board approved compYes
Initial contract exceptionNo
Financial detail (Schedule D)
Board-designated %0.0%
Permanent endowment %100.0%
Endowment held by related orgNo
Fundraising activity (Schedule G)
Uses professional fundraisersYes
Gross fundraising receipts$4.4M
Net to org$3.3M
Retained by contractors$1.0M
ChannelsMail · Phone · Email · In-person · Grant solicitation