About
To raise awareness, build community, improve care and find a CURE for PSP, CBD and MSA.
Donations are tax-deductible
Financial Snapshot
FY ending 2023-06-30Financial history
1617181920212223
RevenueExpenses
Latest FY2023: $3.3M · Peak FY2022: $3.8M · Avg: $3.2M
Foreign activity (Schedule F)
Total spent abroad$457K
Foreign employees0
Foreign offices0
Foreign partnership interestNo
Foreign trust interestNo
| Region | Activity | Spent |
|---|
| NORTH AMERICA | — | — |
| EUROPE (INCLUDING ICELAND & GREENLAND) | — | — |
| EUROPE (INCLUDING ICELAND & GREENLAND) | — | — |
| NORTH AMERICA | — | — |
| EUROPE (INCLUDING ICELAND & GREENLAND) | — | — |
| SOUTH AMERICA | — | — |
Political & Grant Activity
Address
325 Hudson Street 4TH Floor
New YORK, NY, 10013-104
Governance
Voting board members15
Independent members15
Conflict-of-interest policyYes
Whistleblower policyYes
Doc-retention policyYes
Audit committeeYes
990 reviewed by boardYes
Compensation practices
Severance paymentsNo
Equity-based compNo
Supplemental retirement planNo
Board approved compYes
Initial contract exceptionNo
Financial detail (Schedule D)
Permanent endowment %100.0%
Endowment held by related orgNo
Fundraising activity (Schedule G)
Uses professional fundraisersYes
ChannelsGrant solicitation
Public records
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