Overview Money In Money Out People Connected Orgs Positions Interview Endorsements
About The mission of the cystic fibrosis foundation is to CURE cystic fibrosis (CF) and to provide ALL people with CF the opportunity to lead long, fulfilling lives by funding research and DRUG development, partnering with the CF community, and advancing high quality, specialized care.
In care of Michael P Boyle MD
Donations are tax-deductible
Financial Snapshot FY ending 2022-12-31 Financial history 16 17 18 19 20 21 22
Latest FY2022: $248.6M · Peak FY2019: $605.8M · Avg: $319.6M
Foreign activity (Schedule F) Total spent abroad $1.4B
Foreign employees 0
Foreign offices 0
Foreign partnership interest Yes
Foreign trust interest No
Region Activity Spent EUROPE — — NORTH AMERICA — — EAST ASIA AND THE PACIFIC — — MIDDLE EAST AND NORTH AFRICA — — CENTRAL AMERICA & CARIBBEAN — — EAST ASIA & PACIFIC — — EUROPE — — NORTH AMERICA — — MIDDLE EAST AND NORTH AFRICA — — NORTH AMERICA — — EUROPE — — EAST ASIA AND THE PACIFIC — — SOUTH ASIA — —
501(h) election This 501(c)(3) has NOT elected 501(h) — lobbying is permitted but limited under the vaguer "no substantial part of activities" test.
Political & Grant Activity
CYSTIC FIBROSIS FOUNDATION
Address 4550 Montgomery Aveste 1100 N
Bethesda, MD, 20814-000
Governance Voting board members 17
Independent members 16
Conflict-of-interest policy Yes
Whistleblower policy Yes
Doc-retention policy Yes
Audit committee Yes
990 reviewed by board Yes
Compensation practices Severance payments Yes
Equity-based comp No
Supplemental retirement plan Yes
Compensation committee Yes
Used comp survey Yes
Board approved comp Yes
Initial contract exception No
Fundraising activity (Schedule G) Uses professional fundraisers Yes
Gross fundraising receipts $12.2M
Net to org $12.0M
Retained by contractors $176K
Channels Mail · Phone · Email · In-person · Grant solicitation
Public records
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