About
Our mission is to drive research for treatments and a CURE for SMA, and to support and empower everyone impacted by SMA today.
DBA DBA CURE SMA
Donations are tax-deductible
Financial Snapshot
FY ending 2025-06-30Financial history
171819202122232425
RevenueExpenses
Latest FY2025: $15.2M · Avg: $12.4M
Foreign activity (Schedule F)
Total spent abroad$566K
Foreign employees0
Foreign offices0
Foreign partnership interestNo
Foreign trust interestNo
| Region | Activity | Spent |
|---|
| EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM | — | — |
| EAST ASIA AND THE PACIFIC | — | — |
501(h) election
This 501(c)(3) has NOT elected 501(h) — lobbying is permitted but limited under the vaguer "no substantial part of activities" test.
Political & Grant Activity
Address
925 Busse RD
ELK Grove VLG, IL, 60007-240
Governance
Voting board members24
Independent members24
Conflict-of-interest policyYes
Whistleblower policyYes
Doc-retention policyYes
Audit committeeYes
990 reviewed by boardYes
Compensation practices
Severance paymentsNo
Equity-based compNo
Supplemental retirement planNo
Compensation committeeYes
Used comp surveyYes
Board approved compYes
Initial contract exceptionNo
Financial detail (Schedule D)
Board-designated %0.0%
Permanent endowment %89.8%
Endowment held by related orgNo
Public records
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