To marshal and focus the resources and relationships needed to CURE FA by raising funds for research, promoting public awareness and aligning scientists, patients, clinicians, government agencies and pharmaceutical companies dedicated to curing FA and related disorders.
In care of Ronald J Bartek
Donations are tax-deductible
Category
Other
Employees
17
Volunteers
500
Financial Snapshot
FY ending 2023-12-31
Revenue
$11.2M
Expenses
$12.2M
Assets
$7.8M
Liabilities
$1.6M
Financial history
$12.2M$6.1M$0
1617181920212223
RevenueExpenses
Latest FY2023: $11.2M · Avg: $8.3M
Foreign activity (Schedule F)
Total spent abroad$2.3M
Foreign employees1
Foreign offices0
Foreign partnership interestNo
Foreign trust interestNo
Region
Activity
Spent
EUROPE
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—
EAST ASIA AND THE PACIFIC
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—
SOUTH AMERICA
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CANADA
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501(h) election
This 501(c)(3) elected the 501(h) safe-harbor — lobbying expenditures are capped under a clear dollar formula instead of the "insubstantial part" standard.