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Huntingtons Disease Society of America INC

Public charity
DBA: % ROSEMARY COLUCCIO
Other · NEW YORK, NY · EIN 13-3349872

About

Huntington's disease society of america, INC. Is a national voluntary health and welfare orgaization dedicated to improving the lives of people with huntington's disease and their families.

In care of Rosemary Coluccio

Donations are tax-deductible
Category
Other
Employees
36
Volunteers
500

Financial Snapshot

FY ending 2024-12-31
Revenue
$10.2M
Expenses
$11.4M
Assets
$17.3M
Liabilities
$4.6M

Financial history

$12.2M$6.1M$0
161718192021222324
RevenueExpenses
Latest FY2024: $10.2M · Peak FY2021: $12.2M · Avg: $10.4M

Foreign activity (Schedule F)

Total spent abroad$161K
Foreign employees0
Foreign offices0
Foreign partnership interestNo
Foreign trust interestNo
RegionActivitySpent
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES——

Political & Grant Activity

Campaign Spending
—
Lobbying
—
Grants Given
$1.3M
HUNTINGTONS DISEASE SOCIETY OF AMERICA INC
Your actions

Address

505 8TH AVE RM 1402
New YORK, NY, 10018-457

Governance

Voting board members17
Independent members17
Conflict-of-interest policyYes
Whistleblower policyYes
Doc-retention policyYes
Audit committeeYes
990 reviewed by boardYes

Compensation practices

Severance paymentsNo
Equity-based compNo
Supplemental retirement planNo
Used comp surveyYes
Board approved compYes
Initial contract exceptionNo

Financial detail (Schedule D)

Permanent endowment %86.8%
Endowment held by related orgNo
Public records
ProPublica Nonprofit Explorer ↗
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IRS Tax Exempt Organization Search ↗
IRS-side authoritative source. Confirms current exempt status and pulls the latest determination letter.
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