About
To accelerate full spectrum research to cure Rett syndrome and empower families with knowledge and connectivity.
Donations are tax-deductible
Financial Snapshot
FY ending 2024-12-31Financial history
161718192021222324
RevenueExpenses
Latest FY2024: $4.8M · Peak FY2023: $4.9M · Avg: $4.3M
Foreign activity (Schedule F)
Total spent abroad$179K
Foreign employees0
Foreign offices0
Foreign partnership interestNo
Foreign trust interestNo
| Region | Activity | Spent |
|---|
| Europe (Including Iceland & Greenland) | — | — |
| Middle East and North Africa | — | — |
| East Asia and the Pacific | — | — |
Political & Grant Activity
INTERNATIONAL RETT SYNDROME FOUNDATION
Address
4600 Devitt DR
WEST Chester, OH, 45246-110
Governance
Voting board members11
Independent members11
Conflict-of-interest policyYes
Whistleblower policyYes
Doc-retention policyYes
Audit committeeYes
990 reviewed by boardYes
Compensation practices
Severance paymentsNo
Equity-based compNo
Supplemental retirement planNo
Used comp surveyYes
Board approved compYes
Initial contract exceptionNo
Financial detail (Schedule D)
Permanent endowment %100.0%
Endowment held by related orgNo
Public records
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