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National Organization for RARE Disorders INC

Public charityFed auditsIRS 990
DBA: DISORDERS INC
Other · DANBURY, CT · EIN 13-3223946

About

NORD strives to improve the health and well-being of people with RARE diseases by driving advances in care, research, and policy.

DBA Disorders INC

Donations are tax-deductible
Category
Other
Employees
124
Volunteers
1,181

Financial Snapshot

FY ending 2024-12-31
Revenue
$50.7M
Expenses
$43.0M
Assets
$72.3M
Liabilities
$3.7M

Financial history

$66.4M$33.2M$0
161718192021222324
RevenueExpenses
Latest FY2024: $50.7M · Peak FY2023: $66.4M · Avg: $51.8M

Foreign activity (Schedule F)

Total spent abroad$355K
Foreign employees0
Foreign offices0
Foreign partnership interestNo
Foreign trust interestNo
RegionActivitySpent
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM——
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES——
SOUTH ASIA - AFGHANISTAN, BANGLADESH, BHUTAN, INDIA, MALDIVES, NEPAL,——
EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA,——

501(h) election

This 501(c)(3) elected the 501(h) safe-harbor — lobbying expenditures are capped under a clear dollar formula instead of the "insubstantial part" standard.

Political & Grant Activity

Campaign Spending
—
Lobbying
$263K
Grants Given
$23.8M
NATIONAL ORGANIZATION FOR RARE DISORDERS INC
Your actions

Address

7 Kenosia Avenue
Danbury, CT, 06810-739

Governance

Voting board members12
Independent members11
Conflict-of-interest policyYes
Whistleblower policyYes
Doc-retention policyYes
Audit committeeYes
990 reviewed by boardYes

Compensation practices

Severance paymentsNo
Equity-based compNo
Supplemental retirement planNo
Used comp surveyYes
Board approved compYes
Initial contract exceptionNo

Financial detail (Schedule D)

Permanent endowment %100.0%
Endowment held by related orgNo
Public records
ProPublica Nonprofit Explorer ↗
Full 990 PDFs going back to 2001, plus parsed financial extracts. The easiest place to read actual filings.
IRS Tax Exempt Organization Search ↗
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