Overview Money In Money Out People Connected Orgs Positions Interview Endorsements
About To improve quality of life for everyone affected by tuberous sclerosis complex by catalyzing new treatments, driving research toward a CURE and expanding access to lifelong support.
In care of The Organization
Donations are tax-deductible
Financial Snapshot FY ending 2024-12-31 Financial history 16 17 18 19 20 21 22 23 24
Latest FY2024: $10.0M · Peak FY2023: $10.0M · Avg: $7.7M
Foreign activity (Schedule F) Total spent abroad $137K
Foreign employees 0
Foreign offices 3
Foreign partnership interest No
Foreign trust interest No
Region Activity Spent EUROPE (INCLUDING ICELAND AND GREENLAND) — — SOUTH ASIA — —
501(h) election This 501(c)(3) elected the 501(h) safe-harbor — lobbying expenditures are capped under a clear dollar formula instead of the "insubstantial part" standard.
Political & Grant Activity
NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC
Address 8737 Colesville RD
Silver Spring, MD, 20910-392
Governance Voting board members 27
Independent members 27
Conflict-of-interest policy Yes
Whistleblower policy Yes
Doc-retention policy Yes
Audit committee Yes
990 reviewed by board Yes
Compensation practices Severance payments No
Equity-based comp No
Supplemental retirement plan No
Compensation committee Yes
Used comp survey Yes
Board approved comp Yes
Initial contract exception No
Financial detail (Schedule D) Board-designated % 84.9%
Permanent endowment % 14.6%
Endowment held by related org Yes
Public records
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