Overview Money In Money Out People Positions Interview Endorsements
About We give hope. We fund research, advocate for patients, and build a community for ALL impacted by PKD.
In care of TOM ROSS
Donations are tax-deductible
Financial Snapshot FY ending 2024-06-30 Financial history 18 19 20 21 22 23 24
Latest FY2024: $8.8M · Peak FY2022: $18.5M · Avg: $11.5M
Foreign activity (Schedule F) Total spent abroad $300K
Foreign employees 0
Foreign offices 0
Foreign partnership interest No
Foreign trust interest No
Region Activity Spent Europe (Including Iceland and Greenland) — —
501(h) election This 501(c)(3) elected the 501(h) safe-harbor — lobbying expenditures are capped under a clear dollar formula instead of the "insubstantial part" standard.
Political & Grant Activity Address 1001 E 101st TER STE 220
Kansas City, MO, 64131-355
Governance Voting board members 14
Independent members 13
Conflict-of-interest policy Yes
Whistleblower policy Yes
Doc-retention policy Yes
Audit committee Yes
990 reviewed by board Yes
Compensation practices Severance payments Yes
Equity-based comp No
Supplemental retirement plan No
Compensation committee Yes
Used comp survey Yes
Board approved comp Yes
Initial contract exception No
Financial detail (Schedule D) Board-designated % 53.7%
Permanent endowment % 45.0%
Endowment held by related org No
Public records
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