About
The organization's mission is focused on the development of treatments and cures for RETT syndrome and related mecp2 disorders.
Donations are tax-deductible
Financial Snapshot
FY ending 2024-12-31Financial history
161718192021222324
RevenueExpenses
Latest FY2024: $9.3M · Peak FY2017: $12.5M · Avg: $9.1M
Foreign activity (Schedule F)
Total spent abroad$1.2M
Foreign employees0
Foreign offices0
Foreign partnership interestNo
Foreign trust interestNo
| Region | Activity | Spent |
|---|
| EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM | — | — |
Political & Grant Activity
RETT SYNDROME RESEARCH TRUST INC
Address
67 Under Cliff RD
Trumbull, CT, 06611-255
Governance
Voting board members14
Independent members14
Conflict-of-interest policyYes
Whistleblower policyYes
Doc-retention policyYes
Audit committeeYes
990 reviewed by boardYes
Compensation practices
Severance paymentsNo
Equity-based compNo
Supplemental retirement planNo
Board approved compYes
Initial contract exceptionNo
Public records
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