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The Association for Frontotemporal Degeneration

Public charity
DBA: % BETH WALTER
Other · KNG OF PRUSSA, PA · EIN 41-2073220

About

Promote and fund research into developing better diagnostic processes, therapies, and cures for frontotemporal degeneration (FTD); provide information, education, support and advocacy to persons diagnosed with FTD, their families and caregivers; educate physicians and other health professionals about FTD and how to improve patient care; bring about greater public awareness of the nature and prevalence of frontotemporal degeneration and the needs of those who are coping with it; advocate with public officials and promote public and private programs that provide appropriate, affordable and high-quality long-term health care and social services.

In care of BETH Walter

Donations are tax-deductible
Category
Other
Employees
47
Volunteers
362

Financial Snapshot

FY ending 2023-06-30
Revenue
$8.5M
Expenses
$9.7M
Assets
$47.5M
Liabilities
$2.4M

Financial history

$14.8M$7.4M$0
17181920212223
RevenueExpenses
Latest FY2023: $8.5M · Peak FY2018: $14.8M · Avg: $9.3M

Foreign activity (Schedule F)

Total spent abroad$0
Foreign employees0
Foreign offices0
Foreign partnership interestNo
Foreign trust interestNo

501(h) election

This 501(c)(3) elected the 501(h) safe-harbor — lobbying expenditures are capped under a clear dollar formula instead of the "insubstantial part" standard.

Political & Grant Activity

Campaign Spending
Lobbying
$14K
Grants Given
$1.7M
THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION
Your actions

Address

2700 Horizon DR STE 120
KNG of Prussa, PA, 19406-272

Governance

Voting board members18
Independent members18
Conflict-of-interest policyYes
Whistleblower policyYes
Doc-retention policyYes
Audit committeeYes
990 reviewed by boardYes

Compensation practices

Severance paymentsNo
Equity-based compNo
Supplemental retirement planNo
Used comp surveyYes
Board approved compYes
Initial contract exceptionNo

Fundraising activity (Schedule G)

Uses professional fundraisersYes
Gross fundraising receipts$1.8M
Net to org$1.8M
Retained by contractors$70K
Public records
ProPublica Nonprofit Explorer
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