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The Ehlers-Danlos Society

Public charity990-T FY2023
Other · NEW YORK, NY · EIN 38-2813140

About

The ehlers-danlos society is a global organization dedicated to advancing and accelerating research and education in ehlers-danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). We support the development of effective and equitable EDS and HSD therapies and work collaboratively to improve the lives of individuals affected by EDS and HSD.

Donations are tax-deductible
Category
Other
Employees
6
Volunteers
5

Financial Snapshot

FY ending 2024-12-31
Revenue
$5.0M
Expenses
$4.5M
Assets
$8.2M
Liabilities
$529K

Financial history

$9.8M$4.9M$0
161718192021222324
RevenueExpenses
Latest FY2024: $5.0M · Peak FY2023: $9.8M · Avg: $3.8M

Foreign activity (Schedule F)

Total spent abroad$1.9M
Foreign employees22
Foreign offices0
Foreign partnership interestNo
Foreign trust interestNo
RegionActivitySpent
UNITED KINGDOM——

Political & Grant Activity

Campaign Spending
—
Lobbying
—
Grants Given
$1.8M
THE EHLERS-DANLOS SOCIETY
Your actions

Address

447 Broadway 2ND Floor 670
New YORK, NY, 10013-256

Governance

Voting board members11
Independent members11
Conflict-of-interest policyYes
Whistleblower policyYes
Doc-retention policyNo
Audit committeeYes
990 reviewed by boardYes

Compensation practices

Severance paymentsNo
Equity-based compNo
Supplemental retirement planNo
Board approved compYes
Initial contract exceptionNo
Public records
ProPublica Nonprofit Explorer ↗
Full 990 PDFs going back to 2001, plus parsed financial extracts. The easiest place to read actual filings.
IRS Tax Exempt Organization Search ↗
IRS-side authoritative source. Confirms current exempt status and pulls the latest determination letter.
These open in a new tab. AllCiv doesn't host filings directly — these are the authoritative public-record sources.