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The Familial Hypercholesterolemia Foundation

Public charity
DBA: Foundation
Other · FERNANDINA BEACH, FL · EIN 45-4597425

About

The Family Heart Foundation was incorporated February 17, 2012 as a California nonprofit corporation, originally as The Familial Hypercholesterolemia Foundation (the "FH Foundation"). This remains the legal name, with "Family Heart Foundation" added dba or doing business as. The name of the organization was changed in December of 2021 to reflect a broader mission. The Family Heart Foundation is a patient-centered nonprofit dedicated to improving the diagnosis and management of inherited lipid disorders, including familial hypercholesterolemia ("FH") and elevated lipoprotein (a) ("Lp(a). Through research, advocacy, and education, the Family Heart Foundation drives change, and empowers families to navigate their own health.

DBA Foundation

Donations are tax-deductible
Category
Other
Employees
22
Volunteers
374

Financial Snapshot

FY ending 2024-12-31
Revenue
$8.9M
Expenses
$7.8M
Assets
$7.4M
Liabilities
$2.1M

Financial history

$8.9M$4.4M$0
161718192021222324
RevenueExpenses
Latest FY2024: $8.9M · Avg: $4.9M
THE FAMILIAL HYPERCHOLESTEROLEMIA FOUNDATION
Your actions

Address

5548 First Coast HWY
Fernandina Beach, FL, 32034-508

Governance

Voting board members7
Independent members6
Conflict-of-interest policyYes
Whistleblower policyYes
Doc-retention policyYes
Audit committeeYes
990 reviewed by boardYes

Compensation practices

Severance paymentsNo
Equity-based compNo
Supplemental retirement planNo
Board approved compYes
Initial contract exceptionNo
Public records
ProPublica Nonprofit Explorer
Full 990 PDFs going back to 2001, plus parsed financial extracts. The easiest place to read actual filings.
IRS Tax Exempt Organization Search
IRS-side authoritative source. Confirms current exempt status and pulls the latest determination letter.
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