See schedule o.the marfan foundation saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions, including marfan, loeys-dietz, and vascular ehlers-danlos (VEDS) syndromes while creating community. We pursue the most innovative research and make sure that it receives proper funding. We foster an informed public and educated patient community to increase early diagnosis and ensure life-saving treatment. We provide dedicated support to families, caregivers, and healthcare providers.
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM
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501(h) election
This 501(c)(3) elected the 501(h) safe-harbor — lobbying expenditures are capped under a clear dollar formula instead of the "insubstantial part" standard.