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The Parent Project for Muscular Dystrophy Research INC

Public charity
DBA: DYSTROPHY RESEARCH INC
Other · WASHINGTON, DC · EIN 31-1405490

About

The parent project muscular dystrophy (PPMD) fights to END duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.

DBA Dystrophy Research INC

Donations are tax-deductible
Category
Other
Employees
27
Volunteers
500

Financial Snapshot

FY ending 2024-12-31
Revenue
$14.3M
Expenses
$12.9M
Assets
$12.6M
Liabilities
$1.1M

Financial history

$14.3M$7.2M$0
161718192021222324
RevenueExpenses
Latest FY2024: $14.3M · Avg: $11.0M

Foreign activity (Schedule F)

Total spent abroad$186K
Foreign employees0
Foreign offices0
Foreign partnership interestNo
Foreign trust interestNo
RegionActivitySpent
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES
EUROPE (INCLUDING ICELAND & GREENLAND)

501(h) election

This 501(c)(3) elected the 501(h) safe-harbor — lobbying expenditures are capped under a clear dollar formula instead of the "insubstantial part" standard.

Political & Grant Activity

Campaign Spending
Lobbying
$88K
Grants Given
$2.6M
THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC
Your actions

Address

1012 14TH ST NW STE 500
Washington, DC, 20005-340

Governance

Voting board members16
Independent members16
Conflict-of-interest policyYes
Whistleblower policyYes
Doc-retention policyYes
Audit committeeYes
990 reviewed by boardYes

Compensation practices

Severance paymentsNo
Equity-based compNo
Supplemental retirement planNo
Compensation committeeYes
Board approved compYes
Initial contract exceptionNo
Public records
ProPublica Nonprofit Explorer
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IRS Tax Exempt Organization Search
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