Expresses the sense of Congress that: (1) the Federal Government has a responsibility to further research on von Willebrand's disease, improve access to treatment centers for all individuals with bleeding disorders, and increase funding for research; (2) the Director of the National Institutes of Health should develop a 5-year research plan concerning women with bleeding disorders; (3) the Director of the Centers for Disease Control and Prevention should continue to improve outreach, treatment, and prevention of the complications of women's bleeding disorders; (4) physicians should screen all adolescents and all adult women presenting with severe menorrhagia for von Willebrand's disease; (5) hysterectomy for excessive menstrual bleeding should not be performed without the consideration of a bleeding disorder; (6) referral of women with bleeding disorders to a federally sponsored hemophilia treatment center is critical to comprehensive treatment; (7) physicians should be encouraged to conduct clotting factor assays for carrier diagnosis and to facilitate genotyping of the disorder and patients should be referred for genetic counseling when appropriate; and (8) patient advocate organizations and medical specialty societies should continue to collaborate on public education campaigns to educate women about bleeding disorders.
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