Recognizes: (1) the value of the identification of Diamond-Blackfan Anemia (DBA) in identifying implications of cancer predisposition and understanding human development and the molecular basis for certain birth defects; and (2) the importance of centers providing complete care and treatment leading to an increase in correct and early diagnosis.
Commends: (1) Schneider Children's Hospital for providing the first DBA Comprehensive Clinical Care Center and developing the DBA Patient Registry; and (2) the Daniella Maria Arturi Foundation and the Diamond-Blackfan Anemia Foundation for their efforts to facilitate collaboration among the National Institutes of Health (NIH) and the Centers for Disease Control and Prevention (CDC) to achieve a successful multidisciplinary approach aimed at shortening the life cycle of success between the laboratory and applied patient care.
Encourages research efforts to further understand ribosomal protein deficiencies in rare inherited diseases and to advance the treatment options available to those with DBA.
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