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H.R. 5453

BillFederalHouseIn Committee
Aidan's Law
About This Bill
Committee
Latest Action · April 10, 2018
Referred to the House Committee on Energy and Commerce.
Congress
115th (2017–2019)
Introduced
April 10, 2018
Cosponsors (2)
1D 1R
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Summary

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Aidan's Law This bill authorizes newborn screenings for adrenoleukodystrophy (also known as ALD), which is a hereditary condition that damages the insulating membrane of nerve cells in the brain. The bill authorizes hospitals, child care centers, clinics, and similar institutions to test newborns for ALD in accordance with state protocols; such protocols must be approved by the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children. The bill also reauthorizes through FY2022 the heritable disorders screening program for newborns and children that is administered by the Health Resources and Services Administration.

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