This bill amends the Medicaid program to allow states to establish specialized health home programs specifically designed for people with sickle cell disease beginning January 1, 2025. States that set up these programs must ensure that patients receive dental and vision services in addition to regular medical care, regardless of whether those services are typically provided to other Medicaid beneficiaries. The bill requires participating states to submit detailed reports after two years measuring the quality of care, access to healthcare, and total spending for sickle cell disease patients enrolled in these programs. By June 30, 2025, the federal Centers for Medicare and Medicaid Services must publish best practices for states wanting to implement these health home programs based on clinical guidelines and input from sickle cell disease experts and patient advocacy organizations. The legislation targets low-income individuals with sickle cell disease who are already eligible for Medicaid and aims to improve their outpatient care coordination through these dedicated health home services.
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