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S. 5353

BillFederalSenateIn Committee
To establish a national plan to coordinate research on epilepsy, and for other purposes.
About This Bill
Committee
Latest Action · November 20, 2024
Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Congress
118th (2023–2025)
Introduced
November 20, 2024
Cosponsors (2)
1D 1R
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Summary

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This bill establishes a National Plan for Epilepsy to coordinate federal research and services across government agencies aimed at preventing, diagnosing, treating, and curing epilepsy. The plan affects the approximately 3 million adults and 456,000 children living with epilepsy in the United States, addressing the fact that over 30 percent have uncontrolled seizures and the condition costs the nation more than 54 billion dollars annually in health care expenses. The Secretary of Health and Human Services would implement the plan's activities, which include creating an integrated national strategy, improving early diagnosis and care coordination, and addressing health disparities and the financial burden on affected families. The bill establishes an Advisory Council with representatives from federal agencies and experts from the epilepsy community who would meet quarterly and report to Congress every two years with recommendations for priority actions. The legislation provides no specific funding authorization and would expire on December 31, 2035, with the Secretary required to submit annual progress reports to Congress beginning two years after the bill's enactment.

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