The ALS Better Care Act would establish new Medicare coverage for comprehensive services provided to people diagnosed with amyotrophic lateral sclerosis, a progressive neurodegenerative disease. Starting in 2025, Medicare would pay qualified ALS treatment providers a single payment of $800 per patient visit to cover specialized care including physician support, physical and occupational therapy, speech pathology, respiratory support, and other critical services. The payment amount would increase annually based on inflation measures and be reassessed every three years, with higher payments available for providers conducting ALS clinical trials. The bill aims to address inadequate reimbursement rates that currently force ALS care facilities to limit services and extend wait times for patients, while also supporting telehealth options to help patients in rural areas access care. Additionally, the bill directs the National Institutes of Health to report on staffing and administrative challenges facing ALS clinical trials within 90 days of enactment.
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