The Down Syndrome Diagnosis Act requires health insurance plans and insurers to provide informational resources to individuals or parents within 60 days of receiving a Down syndrome diagnosis. The required materials must include up-to-date, evidence-based written information about Down syndrome covering physical, developmental, educational, and psychosocial outcomes, developed jointly by medical experts and disability advocacy groups, along with contact information for Down syndrome support organizations. The bill applies to people enrolled in group health plans or individual health insurance coverage and takes effect for plan years beginning January 1, 2024. The legislation does not specify new federal funding, instead placing the requirement on existing insurance providers to compile and distribute materials. This bill aims to ensure that newly diagnosed individuals and families have access to comprehensive, medically accurate information and support resources at a critical time.
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