The Sickle Cell Disease Treatment Centers Act of 2024 establishes a federal grant program to create networks of hospitals, clinics, and health centers that provide comprehensive care for patients with sickle cell disease and related blood disorders. These networks, called hub-and-spoke systems, connect a central medical hub with smaller healthcare providers (spokes) and partner with community organizations to coordinate patient care, improve access to treatments like stem cell and gene therapies, and help address social factors affecting health like food and housing insecurity. The bill authorizes unspecified funding for fiscal year 2025 and beyond, with 70 percent of funds going to hub-and-spoke operations, 20 percent to community organization support, and 5 percent each to a national coordinating center and disease data collection efforts. The legislation prioritizes serving regions with high concentrations of sickle cell patients and rural areas, with a focus on partnering with historically Black colleges and universities and minority-serving institutions. The Secretary of Health and Human Services must report to Congress within three years and every five years thereafter on patient outcomes and program effectiveness.
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