This resolution designates November 7 of each year as Shwachman Diamond Syndrome Awareness Day to recognize a rare genetic disorder affecting roughly 2,000 Americans. Shwachman-Diamond syndrome is an inherited condition that impacts the bone marrow, pancreas, and skeleton, typically appearing in infants between 4 and 6 months of age and causing bone marrow dysfunction, pancreatic insufficiency, skeletal problems, and significantly reduced life expectancy of more than 30 years. The resolution aims to increase public awareness of this underdiagnosed condition, support those affected by it, and encourage more research into treatments, though no cure currently exists. The designation takes effect immediately and establishes an annual awareness day to promote understanding and research initiatives at national, state, and local levels.
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