This resolution expresses support for designating April as Undiagnosed Awareness Month and April 29th as Undiagnosed Day to raise awareness about rare and undiagnosed diseases affecting approximately 25 million Americans. The resolution highlights that patients with undiagnosed conditions often face prolonged uncertainty, delayed treatment, and financial hardship, with diagnostic journeys averaging over seven years. It recognizes the work of the Undiagnosed Diseases Network, created by the National Institutes of Health in 2015, which has diagnosed over 1,000 Americans and identified more than 90 novel diagnoses through genomic sequencing and artificial intelligence at 24 clinical sites across the country. The resolution also acknowledges the Undiagnosed Diseases Network Foundation, a patient-driven nonprofit supporting families navigating rare diseases. This is a ceremonial resolution that does not require funding or create new programs, but rather calls for greater public awareness and medical education to reduce diagnostic delays and improve access to diagnostic technologies.
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