Recognizing the significant and often overlooked behavioral health needs experienced by individuals and families affected by rare diseases, and for other purposes.
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Committee
Latest Action · May 14, 2026
Referred to the House Committee on Energy and Commerce.
This resolution recognizes that an estimated 25 to 30 million Americans with rare diseases, including more than half who are children, experience significant behavioral health challenges such as anxiety, depression, and caregiver burnout that often go unaddressed. The resolution notes that access to mental health care for these patients and their families is limited due to shortages of trained clinicians, geographic barriers, low reimbursement rates, and fragmented care systems that rarely integrate behavioral health services. The resolution calls on federal agencies including the Department of Health and Human Services, the National Institutes of Health, and the Centers for Medicare & Medicaid Services to prioritize behavioral health access in their rare disease initiatives and funding. It also encourages the expansion of peer support programs, investment in the behavioral health workforce, improvements to insurance reimbursement policies, and increased training for clinicians on rare diseases and their mental health impacts. This is a symbolic resolution expressing congressional support for addressing mental health needs in the rare disease community rather than legislation that directly creates new programs or allocates funding.
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