This bill formally establishes the INCLUDE Project (INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE) within the National Institutes of Health by amending the Public Health Service Act. It directs the Director of NIH to lead a coordinated program of research, training, and clinical investigation focused on Down syndrome and its associated health conditions, including studies on development across the lifespan, biological mechanisms behind related health issues, and links to conditions like Alzheimer's disease and autoimmune disorders. The program also aims to expand clinical trials that include people with Down syndrome and to improve diagnosis, treatment, and overall quality of life for these individuals and their families. NIH is required to coordinate efforts across its various institutes to avoid duplicating research, consult with patient advocates and other stakeholders, and report to Congress every two years on the research being conducted and any resulting medical advances. The bill primarily affects individuals with Down syndrome, their families, and the biomedical research community, and it does not specify a fixed funding amount, leaving appropriations to be determined through the regular federal budget process.
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