H.Res. 385 is a symbolic resolution expressing support for designating May 2, 2025, as "NKH Awareness Day" to raise public and medical awareness of nonketotic hyperglycinemia, a rare genetic disorder affecting approximately 1 in 76,000 people worldwide. NKH is a metabolic disease in which patients cannot break down glycine, causing it to accumulate dangerously in the brain and spinal cord, resulting in severe developmental delays or loss of abilities in affected children. The resolution notes there are only about 500 diagnosed cases worldwide, with 4 known patients in Virginia, and emphasizes that increased awareness could lead to more research, patient registry participation, and earlier diagnoses. The resolution does not allocate any funding or create new programs—it simply urges recognition of the disease and support for awareness efforts. This type of resolution has no direct impact on law or policy but serves to highlight a public health issue and show congressional support for medical awareness initiatives.
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