Expressing support for the designation of June 19, 2025, as "World Sickle Cell Awareness Day" in order to increase public awareness across the United States and global community about sickle cell disease and the continued need for empirical research, early detection screenings, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions relating to sickle cell disease.
About This Bill
Committee
Latest Action · June 20, 2025
Referred to the House Committee on Energy and Commerce.
H.Res. 524 is a symbolic resolution expressing congressional support for designating June 19, 2025, as "World Sickle Cell Awareness Day." The resolution aims to increase public awareness about sickle cell disease, a serious inherited blood disorder that disproportionately affects African Americans and people from certain regions worldwide, and to emphasize the need for continued research, early detection screening, new treatments, and preventative care programs. The resolution highlights that while an estimated 100,000 Americans have sickle cell disease and millions more carry the sickle cell trait, approved treatments remain limited and access to new therapies is unequal across racial and economic groups. The resolution calls on Congress and the federal government to commit to ensuring equitable access to sickle cell treatments, support the creation of a federal interagency group to develop policies addressing this goal, and encourages communities to hold awareness events on the designated day. This is a non-binding resolution with no associated funding or specific timeline beyond the 2025 awareness day designation.
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