H.R. 5355, the Ian Kalvinskas Pediatric Liver Cancer Early Detection and Screening Act, directs the federal government to improve early detection of liver diseases in children, particularly biliary atresia and liver cancer. The bill requires the Government Accountability Office to study existing federal initiatives for detecting pediatric liver tumors, trends in transplant wait-list mortality broken down by geography and demographics, and the cost-effectiveness of adding a direct-bilirubin screening test to newborn panels. Additionally, the Department of Health and Human Services must create and distribute plain-language educational materials about early warning signs of pediatric liver disease and the safety of living liver donation, coordinating with the CDC and other health programs. The legislation carries no new funding authorization, relying instead on existing departmental resources to implement these activities.
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