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S. 5488

BillFederalSenateIn Committee
A bill to establish a program to address sickle cell disease and other heritable hemoglobinopathies.
About This Bill
Committee
Latest Action · September 23, 2026
Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Introduced
September 23, 2026
Cosponsors (2)
2D 0R
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Summary

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The Sickle Cell Disease Treatment Centers Act of 2026 creates a federal grant program to establish "hub-and-spoke" networks for treating sickle cell disease and other inherited blood disorders across the country. These networks connect medical hubs at hospitals and clinics that provide advanced treatments like stem cell transplants and gene therapy with smaller healthcare providers and community organizations to deliver coordinated, lifelong care to patients. The bill establishes a National Sickle Cell Disease Coordinating Center to oversee the networks and develop a national care strategy, while requiring the Centers for Disease Control to collect and monitor data on treatment outcomes and health disparities. Congress will receive progress reports every three to five years, and the bill authorizes federal funding with 70 percent allocated to hub-and-spoke networks, 20 percent to community-based organizations, and 5 percent each to the coordinating center and data collection efforts.

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