Referred to the Committee on Energy and Commerce, and in addition to the Committee on Ways and Means, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.
The ALS Better Care Act expands Medicare coverage for specialized care services needed by individuals with amyotrophic lateral sclerosis (ALS), a progressive neurodegenerative disease. Starting January 1, 2027, Medicare will cover comprehensive ALS-related services including specialized physician support, occupational and speech therapy, physical therapy, dietary support, respiratory care, nursing support, and medical equipment coordination when provided by qualified healthcare providers. The bill establishes a single payment of $800 per visit in 2027 (adjusted annually based on cost increases), with additional payments for providers participating in ALS clinical trials and for new medical technologies. The legislation also eliminates patient cost-sharing for these services and requires the federal government to report within 90 days on challenges facing ALS clinical trial administration and staffing, along with recommendations for improvement. The bill aims to address inadequate reimbursement rates that have created barriers to care, long wait times, and limited access to specialized services, particularly for patients in rural areas through expanded telehealth options.
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