The Candis King Hope for Sickle Cell Families Act directs the Department of Health and Human Services to establish a nationwide data collection program focused on sickle cell disease. Through the Centers for Disease Control and Prevention, the program will award grants to states to gather information about how many Americans have sickle cell disease, which populations are most affected, and how patients are using healthcare services. The bill also requires the HHS Secretary to reinstate employees from the CDC's Division of Blood Disorders and Public Health Genomics who were laid off or removed after January 1, 2025, as part of any significant workforce reductions. The legislation authorizes $10 million per year for the data collection program from 2027 through 2031, with the goal of improving surveillance methods and standardizing how sickle cell disease is tracked across states.
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