The FED UP with Bleeding Disorders Act of 2026 directs the Department of Health and Human Services to review federal programs and research related to bleeding disorders in women and girls, who often face significant delays in diagnosis and lack awareness of their conditions. Congress found that up to 1 percent of American women may have a bleeding disorder but remain undiagnosed, with some waiting 16 years or more for a diagnosis, and that those who receive specialized care at hemophilia treatment centers have 40 percent lower mortality and hospitalization rates. Within two years of enactment, the Secretary must submit a comprehensive report to Congress assessing current research, training, treatment access, and clinical research inclusion, along with recommendations for improved federal coordination across agencies including the NIH, CDC, and VA. The bill also authorizes $10 million per year from 2027 through 2031 for a nationwide public awareness and education campaign targeting women, girls, healthcare providers, and rural and underserved communities to improve diagnosis and treatment of bleeding disorders in these populations.
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