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Dravet Syndrome Foundation INC

Public charity
DBA: % LORI ODRISCOLL
Foundations · CHERRY HILL, NJ · EIN 27-0924627

About

The mission of the Dravet Syndrome Foundation is to aggressively raise funds for Dravet syndrome & related epilepsies; support & fund research; increase awareness; & provide support to affected individuals & families. We understand the ongoing need to fund innovative research, the urgency in finding better treatments, the motivation of our donors to make an impact specifically in the fields of Dravet syndrome and related epilepsies, the importance of transparency and accountability of not only our organization, but the researchers that we fund, and the need for global collaboration in order to find a cure.

In care of LORI Odriscoll

Donations are tax-deductible
Category
Foundations
Employees
13
Volunteers
100

Financial Snapshot

FY ending 2024-12-31
Revenue
$4.2M
Expenses
$4.3M
Assets
$8.5M
Liabilities
$1.6M

Financial history

$4.3M$2.1M$0
192021222324
RevenueExpenses
Latest FY2024: $4.2M · Avg: $3.0M

Foreign activity (Schedule F)

Total spent abroad$499K
Foreign employees0
Foreign offices0
Foreign partnership interestNo
Foreign trust interestNo
RegionActivitySpent
Europe (including Iceland and Greenland)——
North America (including Canada and Mexico, but not the United States)——

501(h) election

This 501(c)(3) elected the 501(h) safe-harbor — lobbying expenditures are capped under a clear dollar formula instead of the "insubstantial part" standard.

Political & Grant Activity

Campaign Spending
—
Lobbying
$9K
Grants Given
$3.0M
DRAVET SYNDROME FOUNDATION INC
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Address

PO BOX 3026
Cherry HILL, NJ, 08034-027

Governance

Voting board members9
Independent members9
Conflict-of-interest policyYes
Whistleblower policyYes
Doc-retention policyYes
Audit committeeYes
990 reviewed by boardYes

Compensation practices

Severance paymentsNo
Equity-based compNo
Supplemental retirement planNo
Used comp surveyYes
Board approved compYes
Initial contract exceptionNo

Financial detail (Schedule D)

Board-designated %99.9%
Permanent endowment %0.1%
Endowment held by related orgNo
Public records
ProPublica Nonprofit Explorer ↗
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